Make a big difference to a child this Christmas -The Bitter Sweet Festive Season -Feeding Tube Dependency by Karelle Logan - Nativity



Two years ago a beautiful baby girl came into our lives. Her name is Kate Mary and she is my niece. Katie was born with a rare chromosomal abnormality of which very little is known. Over the past two years of her life she has faced many challenges to her health with countless hospital stays and operations. Her future is somewhat unknown but in her true fighting spirit she continues to face each challenge with courage and determination. Her parents and those who love her rejoice in the smallest milestones and count each day as a blessing.

One of Katie's greatest challenges has been to get sufficient nutrition to aid healthy weight gain. Breastfeeding was an enormous obstacle, as was bottle feeding. Katie's parents were left with little option but to allow the insertion of a nasal gastric tube via which Katie received sustenance for the first year of her life. After this time a Gastrostomy tube was surgically inserted into her stomach.

Katie recently turned two and whilst she has grown a little in that time she remains dependent on tube feeding and is resistant and disinterested in eating by herself. Life with a tube fed child can be a tiring struggle with parents juggling the need to ensure their child has food in their body, with the strong desire for them to participate in the everyday life of sharing a family meal. Michelle and Peter, Katie's parents lug a montage of equipment around with them to ensure Katie's needs are met. This includes pumps, formula, feeding tubes and all the accessories that go with tube feeding - and that is just to meet Katie's nutritional needs. I thought my nappy bag was full until I saw the car load that follows Katie!

Sadly in Australia there is little if no support for children like Katie to make the transition from tube to food. It is hoped that this will naturally occur as Katie develops and takes further notice of others eating. However, without the feelings of hunger there is little motivation to eat.

Being tube fed has an enormous impact on the development of Katie's language skills, her social interaction and the simplest things like listening to her body and meeting its needs.

I recently had the honour of sharing some conversations with an amazing woman called Karelle Logan. Karelle is the mother of a previously feed tube dependent child. Karelle's strong desire to find support for her son, Spencer led her overseas to Austria to a program that supports tube dependent children to eat. You can read more about Karelle's story later in this newsletter. In realising the enormous deficit in support in Australia Karelle has courageously taken on the role of advocate for the children and families affected by Feed Tube Dependency (FTD). She has set up a website that allows parents to connect with each other and share much needed information. She is also tirelessly lobbying government for change.

I guess my intent in sharing Katie's story is two fold. One, to honour a little girl's courage and her parents and grandparents determination to find the best support for their little girl. And two, to ask you as our readers to consider making a difference in the lives of these children.

This Christmas you can give a simple, free but very valuable gift to a tube dependent child. By signing Karelle's petition asking for support programs and information you are adding your name to the growing number of people who want a better life for FTD children and their families. You can do this by visiting http://tubefedkids.ning.com/forum/topics/final-version-australian

This issue is close to my heart and I understand how difficult it may be to fully comprehend the impact of FTD on children and their families, but with a couple of minutes and a simple click of your mouse, you can help make the world of difference to these precious children.

Thanks for taking the time to share this Christmas gift. I wish you all a wonder-filled festive season. May the New Year bring you much love and happiness.

Warm wishes
Susan
Editor

The Bitter Sweet Festive Season The Bitter Sweet Festive Season
Like most families, the Christmas holidays for us are all about catching up with friends and family, festive events, warm weather, outdoor activities, and the delightful absence of "routine' ....more...
Feeding Tube Dependency by Karelle Logan Feeding Tube Dependency by Karelle Logan
Tube fed kids don't get hungry. It makes perfect sense really. If you were a baby or a young child, why would you want to eat and drink if you are always being fed via a tube? When a child's nutritional and hydration needs are always being met though Tube Feeding, an instinctual desire to eat for hunger and drink for thirst is removed..more...
Nativity

Nativity
The sun was high in the sky when we arrived in Bethlehem. By the time it was low enough to shine in my eyes, Joseph still had not been able to find us a room. My bum was sore and I smelled like donkey and I had been sitting at the well for hours waiting for him to return and take me to a nice comfy inn... .. more...

Recipes

Gingerbread Biscuits

Making gingerbread is part of our family tradition each Christmas. It is really simple and the children love being involved. Over the years we have made many different shaped biscuits for gifts including gingerbread men, hearts, stars and angels.

These look great wrapped in cellophane with some ribbon for a gift. We have also made gingerbread houses and gingerbread reindeer and sleigh. A bit more challenging but heaps of fun. There are loads of cutters available to create your own gingerbread masterpiece. Here is a simple recipe which is easy to work with and tastes yum!

See then complete recipe here Gingerbread Biscuits

or


Visit the recipes section of our Forum

Got a recipe you'd like to share? Login to your user account and add it in our articles section!

give aways

Win one of five Aromababy gift packs valued at $45 each!

aromababyAROMABABY Packs include:
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To enter send an email to susan@naturalparenting.com.au with the words "Cheeki" in the subject heading. Entries close 22nd December 2009.

Winners:
Congratulations to our November winners! The lucky winner of the Dance of the Womb Bellydance DVD is Christine Nolan. Winners of the Weleda Nursing Tea are Georgia Harvey, Kerrie Nannings, Niamh Stephenson, Jen Schellhorn and Eileen Chan. Hope you enjoy your prizes everyone!

Enjoy everyone!


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The role of Forum Leader requires a self motivated, energetic person with a passion and commitment to natural parenting. The successful applicant will enjoy leading a dynamic team and thrive on the creation of innovative projects.

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